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Intellectual Disability Websites and Links of Interest

For individuals, their families, caregivers and providers of services  

Lists acronyms related to Pa. Office of Developmental Programs.

Allegheny County Department of Human Services (DHS) Publications
Many publications regarding supports, services and resources available through DHS and the community.

Disability Rights Network (DRN) of Pennsylvania
Provides publications about many subjects including estate planning, guardianship and assistive technology. The DRN has a mission to advance, protect, and advocate for the human, civil, and legal rights of Pennsylvanians with disabilities.

Everyone Communicates – What you need to know to support people to communicate
As part of the Quality Improvement Initiative on Communication, the Office of Developmental Programs (ODP) Communication Work Group developed a brochure to raise awareness about communication and resources available for Pennsylvanians with complex communication needs.

Family Resource Guide
Provides user-friendly information about an extensive variety and number of resources of interest to parents of children with disabilities.

Gold Book 2010 (The): Understanding the Office of Developmental Programs in Pennsylvania - Mental Retardation and Autism Services
The Gold Book provides information on the subjects of how to register for services, what the waivers are, different service models and what to do if you have a problem. It also features commonly needed forms, lists of resources, contacts, and advocacy organizations and a glossary of terms.

NOTE: Families may request a free copy of the Gold Book. Professionals may order a copy for a small fee.

Home and Community Services Information System (HCSIS) Services and Supports Directory (SSD)
Allows users to locate services, service providers and service definitions for the ID system in Pennsylvania.

Independent Monitoring for Quality (IM4Q)
Monitors the satisfaction and outcomes of people receiving services in the intellectual disability system.

Participant-Directed Services
Provides information about a service delivery option available to persons who live in their own home or the home of a family member or friend and who are, or have a surrogate, willing/able to act as the employer of the people who provide their participant-directed services and supports.

Pa. Department of Human Services (Pa. DHS)
Provides helpful information for individuals (and families) with disabilities and/or limited income. Pa. DHS oversees the Pa. Office of Developmental Programs.

Pa. Office of Developmental Programs (ODP)
Provides information concerning the comprehensive array of services and supports for people with a diagnosis of mental retardation and with autism. ODP is the office within the Pa. DHS which sets policy and guidelines for the ID system through ODP Bulletins and other communications.

Pa. Office of Developmental Programs Consulting
Provides information about the supports and services administered by the Pa. Department of Human Services, Office of Developmental Programs (ODP) and the ID Service System. Users connect with up-to-date information and training materials.

Pa. Office of Developmental Programs Web-based Resources and Supports
Provides regularly updated information, media-rich content, and opportunities for online learning that are tailored to the interests of specific audiences.

Pennsylvania Training Partnership for People with Disabilities and Families
Provides details about trainings and technical assistance available across the state for people with disabilities and their families. Contains ODP bulletins (current, draft and archived), communications, forms (including PUNS and ISP), ODP letters to individuals and families, publications and other resources.  

Southwestern Pennsylvania Health Care Quality Unit (HCQU), APS Healthcare
Provides information about health care and trainings and technical assistance for stakeholders.. On-line resources include Find a Dentist, Dental Resource List, Physical Health Links and Behavioral/Mental Health Links.

Supports Intensity Scale (SIS)
Provides background information related to the SIS standardized needs assessment tool developed by the American Association on Intellectual and Developmental Disabilities.

SIS and Pa. Plus
Provides details about the SIS and the set of nine questions, for use in Pennsylvania only, to provide additional planning information not covered in the Supports Intensity Scale (SIS) assessment.